Celia is a tad better today. Not needing o2 right now, tolerating formula at a slow rate, and was up and about for 1-1/2 hours before laying back down. I'm going to have to re-schedule her MRI. I just don't see anyway she will be up for the travel and they probably won't do it since she's been sick.
Our friend Baylie goes for her follow-up MRI today after having surgery to drain 2 blood clots from her brain. Please pray for great results!!!
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Gretch
I am a SAHM of 3 girls.
Heather is 20 and lives in Colby.
Aimee is 17. She is artistic and has a great sense of humor!!
Celia is 12. She is energetic, inquisitive, and full of life!! Celia was born with Dandy-Walker Syndrome and a host of anomalies. She has a trach and is all G-Tube fed. She also has a cleft palate(finally repaired at 9 yo!), t-tubes, asd and left pulminary arterial stenosis, aspiration, reflux, fundo, npo, dysphagia, kidney defect, neurogenic bladder, spina bifida, scoliosis, seizures, low imperforate anus, hip dysplasia, sensory issues, ADHD, vasomotor rhinitis, autistic like behaviors, hearing aides.
This blog is to keep in touch with everyone and keep everyone updated on the girls.
Heather is 20 and lives in Colby.
Aimee is 17. She is artistic and has a great sense of humor!!
Celia is 12. She is energetic, inquisitive, and full of life!! Celia was born with Dandy-Walker Syndrome and a host of anomalies. She has a trach and is all G-Tube fed. She also has a cleft palate(finally repaired at 9 yo!), t-tubes, asd and left pulminary arterial stenosis, aspiration, reflux, fundo, npo, dysphagia, kidney defect, neurogenic bladder, spina bifida, scoliosis, seizures, low imperforate anus, hip dysplasia, sensory issues, ADHD, vasomotor rhinitis, autistic like behaviors, hearing aides.
This blog is to keep in touch with everyone and keep everyone updated on the girls.
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1 comment:
Gretch, that is great news about the O2, and I sincerely hope when the MRI is complete it will bring good news. Sending positive thoughts and vibes to your family.
Warmest thoughts,
Lisa
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