We are making Celia new bids,,ok Nana is making Celia new bibs. This is the first one,,Isn't it cute?!!?!?
Still haven't heard from the NS about a date to go see him. This life is always hurry up and wait!!
I got Celia scheduled for the seating clinic in Wichita. They will measure her and see what kind of wheelchair she should have. The one she has now is ok but doesn't have all the things we need on it. We will go to that Feb. 10th at 1:30. It will take a couple of hours, then it can take up to 120 days to actually get the wheelchair!! Crazy huh?!?!
Nothing new with Heather and Aimee.
Jeff's birthday is Fri.16th!!!!! I won't tell his age(as much as I love to rub it in). Let's just say he is old enough that he has been over the hill a few times LOL!!!!
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Gretch
I am a SAHM of 3 girls.
Heather is 20 and lives in Colby.
Aimee is 17. She is artistic and has a great sense of humor!!
Celia is 12. She is energetic, inquisitive, and full of life!! Celia was born with Dandy-Walker Syndrome and a host of anomalies. She has a trach and is all G-Tube fed. She also has a cleft palate(finally repaired at 9 yo!), t-tubes, asd and left pulminary arterial stenosis, aspiration, reflux, fundo, npo, dysphagia, kidney defect, neurogenic bladder, spina bifida, scoliosis, seizures, low imperforate anus, hip dysplasia, sensory issues, ADHD, vasomotor rhinitis, autistic like behaviors, hearing aides.
This blog is to keep in touch with everyone and keep everyone updated on the girls.
Heather is 20 and lives in Colby.
Aimee is 17. She is artistic and has a great sense of humor!!
Celia is 12. She is energetic, inquisitive, and full of life!! Celia was born with Dandy-Walker Syndrome and a host of anomalies. She has a trach and is all G-Tube fed. She also has a cleft palate(finally repaired at 9 yo!), t-tubes, asd and left pulminary arterial stenosis, aspiration, reflux, fundo, npo, dysphagia, kidney defect, neurogenic bladder, spina bifida, scoliosis, seizures, low imperforate anus, hip dysplasia, sensory issues, ADHD, vasomotor rhinitis, autistic like behaviors, hearing aides.
This blog is to keep in touch with everyone and keep everyone updated on the girls.
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1 comment:
How adorable! I wish I was crafty. :o) Good luck at the seating clinic. Hopefully Celia will get a new schnazzy wheelchair with all the bells and wistles she could ever want!
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