We made it to Wichita!! I hope we get some sleep tonight. Celia is still not real great about sleeping anywhere but her bed. I'll update when I can tomorrow after the MRI.
Aimee is 17. She is artistic and has a great sense of humor!!
Celia is 12. She is energetic, inquisitive, and full of life!! Celia was born with Dandy-Walker Syndrome and a host of anomalies. She has a trach and is all G-Tube fed. She also has a cleft palate(finally repaired at 9 yo!), t-tubes, asd and left pulminary arterial stenosis, aspiration, reflux, fundo, npo, dysphagia, kidney defect, neurogenic bladder, spina bifida, scoliosis, seizures, low imperforate anus, hip dysplasia, sensory issues, ADHD, vasomotor rhinitis, autistic like behaviors, hearing aides.
This blog is to keep in touch with everyone and keep everyone updated on the girls.
1 comment:
Glad you made it there safely!
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