I honestly don't know where to start!!

The trip to Denver went fine.
We left thinking we had an answer,,HOWEVER the NS called today and said he doesn't agree with the rehab doc that it is tethered cord,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,
1st appt. was with Rehab,,They were awesome and very helpful. The rehab doc said he is convinced it is tethered cord,, and because of her loss of muscle tone she needs to be in AFO braces(braces on her lower legs) to give her stability to walk.
2nd appt. was with Uro,,hhmmmm missed that one because rehab took too long and we had to reschedule.
3rd appt. was with Ortho,,hips are on the back burner for now,,Scoliosis has increased by 10 degrees and is now at a point of needing surgery HOWEVER our ortho has stopped doing scoli so we have to see another doc, I am fine with that because the other doc is the Head of the Spine dept.!!
Hhhmmm where does that leave us, I don't know other than more docs and more tests.
The NS wants us to see a neurologist that specializes in neuromuscular disease because of her loss of calf and thigh muscles and increase in curvature of her spine. He said he wants everything else ruled out before he would do surgery, which is great BUT we are 6 hours away and can't just hop on over for appt.'s and tests. Not to mention the cost and stress of traveling.
I just don't know,,My head is swimming and I am stressed to the max, Thank God Celia is none the wiser and LOVES going to Denver!! LOL She knows where we are by the time we start seeing airplanes(from the airport on the east side of Denver) and she points the way to the hotel!!!