It has been an ok week,,,some good,,,some bad.
The good: Ins. approved Celia's wheelchair!!! AND Celia got her new AFO's!!!
The bad: We have to go back to Denver for a Urodynamics study and bloodwork. Still on a quest to find a reason for Celia's regressions. These tests will not tell us whether or not she has TC but rather rule in or out other things. Make sense?! Ha ha Yes it is a vicious cycle!!!
I have a ton of pics to post,,I promise to do that as soon as I get them on here from my camera!!
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Gretch
I am a SAHM of 3 girls.
Heather is 20 and lives in Colby.
Aimee is 17. She is artistic and has a great sense of humor!!
Celia is 12. She is energetic, inquisitive, and full of life!! Celia was born with Dandy-Walker Syndrome and a host of anomalies. She has a trach and is all G-Tube fed. She also has a cleft palate(finally repaired at 9 yo!), t-tubes, asd and left pulminary arterial stenosis, aspiration, reflux, fundo, npo, dysphagia, kidney defect, neurogenic bladder, spina bifida, scoliosis, seizures, low imperforate anus, hip dysplasia, sensory issues, ADHD, vasomotor rhinitis, autistic like behaviors, hearing aides.
This blog is to keep in touch with everyone and keep everyone updated on the girls.
Heather is 20 and lives in Colby.
Aimee is 17. She is artistic and has a great sense of humor!!
Celia is 12. She is energetic, inquisitive, and full of life!! Celia was born with Dandy-Walker Syndrome and a host of anomalies. She has a trach and is all G-Tube fed. She also has a cleft palate(finally repaired at 9 yo!), t-tubes, asd and left pulminary arterial stenosis, aspiration, reflux, fundo, npo, dysphagia, kidney defect, neurogenic bladder, spina bifida, scoliosis, seizures, low imperforate anus, hip dysplasia, sensory issues, ADHD, vasomotor rhinitis, autistic like behaviors, hearing aides.
This blog is to keep in touch with everyone and keep everyone updated on the girls.
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1 comment:
Hooray for getting approval for the wheelchair and AFO's!
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