I mentioned it when we chatted and I'm going to say it again, I can't believe how FAST she is. It's SO GREAT to see it on video. Even with the set-backs recently she sure seems to be doing great to me. It actually gives me a lot of hope for Ainsley since they share the cerebellum issue.
Aimee is 17. She is artistic and has a great sense of humor!!
Celia is 12. She is energetic, inquisitive, and full of life!! Celia was born with Dandy-Walker Syndrome and a host of anomalies. She has a trach and is all G-Tube fed. She also has a cleft palate(finally repaired at 9 yo!), t-tubes, asd and left pulminary arterial stenosis, aspiration, reflux, fundo, npo, dysphagia, kidney defect, neurogenic bladder, spina bifida, scoliosis, seizures, low imperforate anus, hip dysplasia, sensory issues, ADHD, vasomotor rhinitis, autistic like behaviors, hearing aides.
This blog is to keep in touch with everyone and keep everyone updated on the girls.
2 comments:
the videos are too cute... she looks like she really took to her walker.
I mentioned it when we chatted and I'm going to say it again, I can't believe how FAST she is. It's SO GREAT to see it on video. Even with the set-backs recently she sure seems to be doing great to me. It actually gives me a lot of hope for Ainsley since they share the cerebellum issue.
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