Back from a week in Denver for Bowel managment week. Everything went really well!! I won't go into detail for obvious reasons of not wanting to gross everyone out but if you want info let me know and I will tell all!!
We go back to Denver in less than 2 weeks for the high risk surgery planning, and
discharge planning meetings in preperation of Celia's scoliosis surgery. After coming home we will have 2 weeks and then back again to Denver for the surgery!
Aimee is 17. She is artistic and has a great sense of humor!!
Celia is 12. She is energetic, inquisitive, and full of life!! Celia was born with Dandy-Walker Syndrome and a host of anomalies. She has a trach and is all G-Tube fed. She also has a cleft palate(finally repaired at 9 yo!), t-tubes, asd and left pulminary arterial stenosis, aspiration, reflux, fundo, npo, dysphagia, kidney defect, neurogenic bladder, spina bifida, scoliosis, seizures, low imperforate anus, hip dysplasia, sensory issues, ADHD, vasomotor rhinitis, autistic like behaviors, hearing aides.
This blog is to keep in touch with everyone and keep everyone updated on the girls.
1 comment:
I'm glad you survived the trip and all is set for Celia's upcoming surgery. Take care.
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