Thursday, July 15, 2010

A very picture heavy post!!

So straight, even from the front!!!
Lauren(cousin) visiting Celia.
Aimee and Celia
Celia helping the RT bag in her breathing treatment!!
Woo hoo look at that straight back!!
Celia's wall of cards!!
Nana and Celia
Part of our beloved Ortho team(Surgeon Dr.Erickson in dark blue)
First time sitting up in the recliner.
Nana lovin Celia!!
Second time sitting up in the recliner!!
Sitting up BIG with Daddy!!!
Awe daddy and Celia!!
So much going on!
Today we moved to the floor which is great news but as always with good news there is bad news!
This morning she pulled out her central line OUCH but it didn't seem to bother her however it creates all kinds of complications for us as we no longer have ANY IV access!  3 attempts were made to get an IV in but every one blew right away. We are giving that a rest for now as we are on all g-tube meds anyway and can still get a blood draw pretty easliy.
Her stomach is horribly distended and hard as a rock so we have paused formula, started Pedialite,  venting with a Ferrell bag to prevent any more air from heading south and have started some strong enemas to try to clear out her intestines!!
Her lungs are not doing the best,,growing several things so we started Augmentin as it is broad until we know specifics and can target the ickies specifically. Talking about starting back on CPAP and being more aggressive with breathing treatments.
We had a great day in regards to PT!! Got her up and walked with her walker(and lots of support) about 6 feet, then sat for a few minutes then walked about 3 feet then sat in the recliner for a few minutes before the 3 feet back to bed!!! Very proud of my punky girl that despite the pain she charges on!!!!

1 comment:

Susan said...

And proud you should be! She's doing great, getting up and walking! I hope these other things settle down and she continues to recover. I'm sure you'd love to get home. Hugs to you all.